The Special Needs Planning Guide: How to Prepare for Every Stage of Your Child's Life

Authors: John Nadworny, Cynthia R. Haddad

Format: Paperback w/CD-ROM, 336 pages, 6.0 x 9.0
ISBN: 9781557668028
Price: $29.95

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Description

Developed by two financial planning experts who also have family members with special needs, this one-of-a-kind book is an absolute must-have as parents and other caregivers plan for the lasting financial security of their families.

Transforming the financial planning presentations theyve given to families across the country into a thorough, easy-to-read resource, the well-known authors give parents a chronological guide for each stage from birth to adulthood. Parents will get comprehensive advice and strategies on how to address

  • financial factors—including mortgages and other expenses, insurance policies, investments, and savings
  • legal factors—such as conducting estate planning, weighing guardianship with less restrictive alternatives, and creating a Special Needs Trust to ensure a child's future
  • government factors—identifying and supplementing government benefits, such as residential services, supported employment, and respite care
  • family and support factors—such as the familys values, the parents careers, sibling considerations, and contributions of extended family members
  • emotional factors—such as dealing with both positive and negative feelings, staying connected with others, and using strong emotions to fuel advocacy

Included are all the tools families need to create an effective action plan for their finances: planning checklists and forms, a helpful glossary of financial terms, planning pointers that help readers remember key points, and extended case studies dramatizing other families evolving challenges and solutions. Plus, the CD-ROM in the back of the book contains a helpful Financial Planning Timeline and a printable Letter of Intent that lets parents communicate key information, concerns, and desires to future caretakers.

A book parents will use for the rest of their lives, this guide is also a necessary addition to the reference library of every service provider.


Reviews

Review: Wicked Local Belmont
"The first of its kindProvides a clear roadmap and set of guidelines to demystify the challenges of planning for individuals with disabilities, and their families."
Review: QUEST
Full textThe authors, both active in national parent and advocacy gorups, present financial planning information in chronological format. Besides financial support, the book looks into the emotional, family, legal and health aspects of planning, and incorporates valuable resources and practical solutions.
Review by: Dan Becker, parent
"This is the definitive guide to special needs planning, written by two authors whose personal experience, depth of professional knowledge and financial expertise qualifies them perfectly. It is a super book in every respect, and will become indispensable to all parents who use it."
Review: about.com Parenting Special Needs (5-star review)
"Planning for the legal and financial needs of even a 'normal' family can be overwhelming, but add a child with special needs to the equation and the degree of difficulty soars. Authors Nadworny and Haddad have family members with disabilities, so they know the problems firsthand -- and try to guide you gently away from them in a calm, compassionate, and only mildly panic-inducing guide."
Review by: Marvin Natowicz, Vice Chairman, Genomic Medicine Institute, Cleveland Clinic
"An extremely valuable resource for both families and professionals who seek to provide for the current and future care and quality of life of an individual with special needs."
Review by: James Brett, former member, The President's Committee For People With Intellectual Disabilities
"A must-have reference. . . will serve as a great tool to help families navigate through the many challenges, while giving them thoughtful and practical solutions."
Review by: Allen Crocker, Associate Professor of Pediatrics, Harvard Medical School, Senior Associate in Medicine, Childrens Hospital Boston
"A treasure chest of information . . . held together with family values that close gaps and lead to goals."
Review by: William Catelli, Jr., Secretary, Board of Directors, The Arc of The United States
"Excellent...simply written and understandable, yet concise enough to serve as a road map that will assist families of persons with special needs to navigate the highway of life from childhood to adullthood."
Review by: Dee Lee, author, Women & Money
"Will become a classic for families who have special needs children...There is no other resource book like it for parents."

Table of Contents

Contents of the Accompanying CD-ROM
About the Authors
Foreword - Marty Wyngaarden Krauss
Preface
Acknowledgments
Introduction
  1. The Special Needs Planning Timeline

  2. An Overview of Special Needs Planning

  3. Practical Steps in the Planning Process

  4. The Five Factors to Consider in Special Needs Planning

  5. Planning for Stage I-Child's Birth to Age 3

  6. Planning for Stage II-Child's Ages 3-15

  7. Planning for Stage III-Child's Ages 16-21

  8. Planning for Stage IV-Children Age 22 and Beyond

  9. Important Special Needs Planning Tools and Terminology
Bibliography
Glossary
Appendix: Letter of Intent
Index

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