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Doing Science and Doing Good -- Edited by Richard L. Schiefelbusch, Ph.D., & Stephen R. Schroeder, Ph.D.

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"A fitting tribute to [an] intellectual Mecca . . . a compelling tale of accomplishment that has created the platform for an equally promising future."
Travis Thompson, Ph.D., Professor, Department of Pediatrics, University of Minnesota School of Medicine, Minneapolis

"[The editors] are giants, and we should all be grateful that they have documented the Kansas story for future generations."
Marsha Mailick Seltzer, Ph.D., Director, Waisman Center; Interim Director, Wisconsin Institutes for Discovery; Vaughan Bascom Professor of Social Work and Pediatrics, University of Wisconsin–Madison

"The Institute is indeed a national treasure for those concerned about the quality of life for children, adolescents, and adults with developmental disabilities."
John G. Borkowski, Ph.D., Andrew J. McKenna Family Professor of Psychology, University of Notre Dame, Notre Dame, Indiana

This fascinating volume chronicles the rich 85-year history of one of the foremost research centers in the fields of mental retardation and developmental disabilities—the Bureau of Child Research and its successor, the Schiefelbusch Institute for Life Span Studies at the University of Kansas. Written and edited by the founders and directors of these highly influential institutions, Doing Science and Doing Goodoffers an in-depth portrait of how these centers have shaped and defined their fields, supported groundbreaking research efforts, and unlocked new opportunities for all people with disabilities. Readers will

  • explore how the fields of disability and child research have changed over eight decades
  • get historical perspectives on the field’s most renowned leaders
  • relive the discoveries that shaped research and intervention
  • survey the evolution and impact of relevant legislation
  • examine the contributions of more than a dozen affiliated programs of the LSI and the Bureau of Child Research, such as the Juniper Gardens Children’s Project, the  Beach Center on Disability, and the Life Span Institute at Parsons
  • get a clear picture of the challenges future research should address

An illuminating read for all professionals working with children, adolescents, and adults with disabilities, this book is a stirring testament to one institution’s remarkable legacy — and an inspiration to any program striving to make a difference.

Table of Contents

Introduction: A Cluster of Miracles

I: The Bureau of Child Research: 1921–1990
Edited by Richard L. Schiefelbusch, Robert Hoyt, and Joseph E. Spradlin

  1. How Child Research Came to  Kansas and Stayed
    Richard L. Schiefelbusch

  2. The Continuing History of the Bureau of Child Research: The Second Beginning
    Richard L. Schiefelbusch and Robert Hoyt

  3. Background: The Times
    Robert Hoyt and Joseph E. Spradlin

  4. The Communications Program Project and the  Parsons Research  Center 
     Joseph E. Spradlin

  5. The Emergence of the  Kansas  Center 
    Richard L. Schiefelbusch

  6. The Juniper Gardens Children’s Project
    R. Vance Hall, Richard L. Schiefelbusch, 
    Charles R. Greenwood, and Robert Hoyt

  7. Projects of the  Kansas Mental  Retardation  Research  CenterRichard L. Schiefelbusch

  8. Projects of the  Kansas  University Affiliated Facility
    Richard L. Schiefelbusch

  9. The Transition Years
    Richard L. Schiefelbusch

  10. Communications and Media in the Bureau of Child Research
    Robert Hoyt

II: The Schiefelbusch Institute for Life Span Studies: 1990–2006
Edited by Stephen R. Schroeder

  1. The Roots of the Schiefelbusch Institute for Life Span Studies
    Stephen R. Schroeder

  2. Important Historical Events Setting the Stage for the Life Span Institute 
    Stephen R. Schroeder

  3. The  Kansas Mental  Retardation  Research  Center 
    Stephen R. Schroeder, Richard L. Schiefelbusch,
    and Paul D. Cheney

  4. The  Kansas  University  Center for Excellence on Developmental Disabilities (Formerly the  Kansas  UniversityAffiliated Program): 1990–2002
    Stephen R. Schroeder, Richard L. Schiefelbusch, R.Matthew Reese, David Lindeman, Kathleen Olson, and Richard R. Saunders

  5. The  Gerontology  Center 
    David Ekerdt

  6. The Juniper Gardens Children’s Project: 1990–2001
    Charles R. Greenwood, with Contributions by Carmen Arreaga-Mayer, Judith Carta, Debra Kamps, and Cheryl Utley

  7. The Communication of People with Mental Retardation Program Project: 1990–2005
    Richard R. Saunders, Joseph E. Spradlin, and James A. Sherman

  8. The Severe Aberrant Behavior and Mental RetardationProgram Project
    Joseph E. Spradlin and Stephen R. Schroeder

  9. The  Beach  Center on Disability: 1988–2005
    Rud Turnbull

  10. The Research and  Training  Center on Independent Living
    James Budde

  11. The Child Language Doctoral Program
    Mabel Rice and Richard L. Schiefelbusch

  12. The Merrill Advanced  Studies  Center 
    Mabel Rice and Richard L. Schiefelbusch

  13. A History of the Work Group for Community Health and Development
    Stephen Fawcett

  14. The Center for Multicultural Leadership
    Stephen R. Schroeder and Jacob Gordon

  15. A History of the International Program of the Life Span Institute: 1990–2001
    Stephen R. Schroeder

  16. The History of the  University of  Kansas at Parsons Providing Access to Information and Technology
    Charles Spellman, Pamela Cress, and Sara Sack

  17. The Legacy of the Bureau of Child Research and the Life Span Institute: 1921–2001
    Richard L. Schiefelbusch and Stephen R. Schroeder

  18. The Future of the Schiefelbusch Institute for Life Span Studies
    Steven F.Warren


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