Supporting Students with Special Health Care Needs: Guidelines and Procedures for Schools, Third Edition

Volume Editors: Stephanie M. Porter M.S.N, RN, Patricia A. Branowicki, Judith S. Palfrey; Illustrator: Marcia Williams; Foreword Author: Betsy Anderson

Format: Layflat, 520 pages, 8.5 x 11.0
ISBN: 9781598570632
Price: $59.95

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Essential for every school health office, this fully illustrated reference is the ultimate guide to caring for and supporting children with special health care needs in educational settings. A comprehensive update of the classic guide school nurses trust, this authoritative book compiles the latest guidelines on working with students with special health care needs, step-by-step procedures for using today's medical technologies, and access to more than 50 reproducible planning forms and checklists. Experts from nursing, medicine, and parent advocacy across the country reviewed and vetted the content, so you can implement the techniques and guidelines with confidence. A must for school nurses and related professionals, this practical reference tool will help schools deliver the services and supports that promote health, safety, and success for children with special health care needs.

  • Supporting students with a wide range of special care needs, such as respiratory concerns, neurological issues, diabetes, allergies, and bladder and kidney issues
  • Safely and skillfully using medical technologies, including feeding tubes, insulin administration devices, baclofen pumps, ventilators, ostomies, intravenous lines, oxygen and more
  • Planning supportive classrooms that meet legal requirements and are well prepared for both everyday care and medical emergencies
  • Collaborating with a student's whole health care team to create a family-centered, child-centered health care plan
  • Meeting the needs of culturally and linguistically diverse families
  • Facilitating a student's smooth transition from the pediatric to adult health care systems

PRACTICAL MATERIALS: More than 100 high-quality illustrations, plus printable online forms and checklists to ensure organized record keeping, training, and program planning.

With 50+ reproducible materials!

  • Dozens of skills checklists for specific medical technologies
  • Entrance Process Checklist
  • Individualized Health Care Plan forms
  • Emergency Plan form for students
  • One-Page Portable Medical Summary Template
  • Latex Allergy Checklist for Schools
  • School and Camp Medication Order
  • and more!


Review by: Donna Mazyck, Executive Director, National Association of School Nurses
“For years, school nurses have used earlier editions of [this book]. The third edition will enable school nurses continued access to this resource.”
Review by: J. Carolyn Graff, Boling Center for Developmental Disabilities, University of Tennessee Health Science Center
“An excellent resource for nurses, teachers, and all professionals working with children with special health care needs! A comprehensive, insightful, and practical reference.”
Review by: Marilyn Krajicek, University of Colorado Denver College of Nursing
“An excellent evidence-based resource book will serve to support school nurses and other health care professionals in working to provide a safe and appropriate environment for children with special health care needs and their families.”
Review by: Deb Robarge, Health Center Director, Indiana School for the Deaf
“Should be the go-to reference book for all nurses who care for our students with special health care needs, especially those assisted by medical technology.”

Table of Contents

About the Reproducible Forms
About the Editors
Foreword: Betsy Anderson
How to Use This Book

I. Children and Youth Assisted by Medical Technology in Educational Settings
  1. Caring for Children with Special Health Care Needs in Schools and the Community
    Ann Marie Foustoukos, Elizabeth Tannebring, Elena Daha-Slakova, Maureen McAndrew, Emily J. Davidson, and Lynn Hook
    • Care Coordination for the Child Assisted by Medical Technology
    • Psychosocial Issues in Caring for the Child Assisted by Medical Technology
    • Children Assisted by Medical Technology in the School Setting
    • Summary
    • References
  2. Creating a Positive School Experience: Perspectives from the Team
    Erin Ward and Mark Ward
    • Who Are the Students that Are Assisted by Medical Technology?
    • The Complex Needs of the Students Who Use Medical Technology
    • Meeting Social and Emotional Needs in the School Setting
    • The School Experience for Students Who Are Assisted by Medical Technology and for Their Classmates
    • Building Comprehensive and Positive School Teams
    • Summary
    • References
    • Suggested Resources
  3. Legal Issues in the Education of Students with Special Health Care Needs
    Matthew Engel, Patricia Saji, and Timothy Sindelar
    • Individuals with Disabilities Education Act
    • Rehabilitation Act of 1973 (PL 93-112), Section 504
    • Americans with Disabilities Act of 1990 (PL 101-336) and Amendments
    • The Family's Role in Ensuring the Rights of Their Child
    • Other Laws, Regulations, and Standards
    • Summary
    • References
  4. The Child with Special Health Care Needs: Planning for Care in the Educational Setting
    Christine M. Obusek, Dottie Page, Karen Baldassari, Judith S. Palfrey, and Stephanie M. Porter
    • Utilizing Family-Centered Care and the Collaborative Health Care Team
    • Identification of the Student with Special Health Care Needs
    • Roles of the Student's Assessment and Planning Team Members
    • Health Assessment and Planning: The Individualized Health Care Plan
    • Selected Resources
    • Web Resources
    • Appendixes
      • Entrance Process Checklist
      • Individualized Health Care Plan: Brief Version
      • Individualized Health Care Plan: For the Student with Complex Health Issues
      • Physician's Order for Specialized Health Care Procedure
      • Individualized Health Care Plan: Systems-Based Plan
      • Nursing Systems-Based Interview and Physical Assessment for the School Nurse
      • Emergency Plan (Student Specific)
  5. Preparing Students for Health Care Transition: Strategies for Youth, Families, and School Nurses
    Patti Hackett-Hunter and Patience H. White
    • Preparing for Health Care Transition: A Pivotal Role for School Nurses
    • Health Care Transition Preparation Before the Transfer to Adult Health Care: The Role of and Opportunities for School Nurses
    • Case Examples: Meet Four Students with Different Long-Term Health Issues
    • Educational Domains and Health Considerations
    • One-Page Portable Medical Summary
    • Make-My-Day Documentation
    • Texting, Tweeting, and "Talking" with Students via Social Media as Potential Adjuncts to Clinical Care
    • Summary
    • References
    • Appendixes
      • Six Core Elements for Health Care Transition Improvement
      • Mnemonic for Health Issues for Youth
      • Transitions: Changing Roles for Youth
      • Transitions: Changing Roles for Families
      • One-Page Portable Medical Summary Template
      • One-Page Portable Medical Summary Example
  6. Safe Transportation of Children with Special Health Care Needs
    Kathryn Gustafson and Michele DeGrazia
    • Applicable Laws, Regulations, and Transportation Plans
    • Selecting a Child Safety Restraint System
    • Age-Specific Considerations
    • Other Considerations Relative to Transportation
    • Summary
    • References
    • Web Resources
  7. Infection Prevention and Control in the School Setting
    Gail Potter-Bynoe and Patricia Scanlon
    • Infection Transmission
    • Infection Prevention and Control: Standard Precautions
    • Special Considerations in School Settings
    • Summary
    • References
    • Web Resources
  8. Allergies to Food and Latex in the School Setting
    Karol G. Timmons
    • Food Allergy
    • Latex Allergy
    • Legal Protections for Children with Food and Latex Allergies in Schools
    • Essentials in Planning
    • Summary
    • References
    • Web Resources
    • Appendix: Latex Allergy Checklist for Schools
  9. Disaster Planning for Children with Special Health Care Needs and Disabilities
    Stephen G. Monteiro, Sarita Chung, and Frances J. Damian
    • Vulnerabilities of Children
    • Overview of Emergency Preparedness Phases
    • Case Scenario: Shelter in Place
    • Case Scenario: Evacuation
    • The Role of the School Nurse
    • Importance of Home Preparedness for Families of Children with Special Health Care Needs
    • Summary
    • References
    • Additional Resources
    • Appendixes
      • Hazard and Vulnerability Analysis
      • Roles and Training Levels
  10. Working with Families and Students of Diverse Cultures and Languages
    Eva Gomez
    • Understanding Health Disparities
    • Case Scenario: A Perspective of a Child with a Disability
    • Understanding Families in a Cultural Way
    • Case Scenario: The Unique Perspective of a Family Who Has a Child Assisted by Medical Technology
    • Summary
    • References
II. Guidelines for Care
  1. Tube Feeding
    Julia Perkins and Fiona Paul
    • Gastrointestinal System
    • Gastrostomy Tube
    • Skin Level Gastrostomy Tubes
    • Nasogastric Tube
    • Jejunostomy Tube
    • Nasojejunal Tube
    • Suggested Resources
  2. Intravenous Lines
    Lauren E.B. Stone and Patricia Pratt
    • Circulatory System Structure and Function
    • Central Venous Catheter
    • Peripherally Inserted Central Catheter
    • Suggested Resources
  3. Dialysis
    Elizabeth Ann Hughson and Janet MacDonald
    • Urinary System Structure and Function
    • Hemodialysis
    • Peritoneal Dialysis
    • Suggested Resources
  4. Clean Intermittent Catheterization
    Rosemary Grant and Mary Jo Dunleavy
    • Urinary System Structure and Function
    • Clean Intermittent Catheterization
    • Suggested Resources
  5. Ostomy Care
    Rosemary Grant and Sandra Quigley
    • Gastrointestinal System Structure and Function
    • Ostomies for Elimination
    • Colostomy
    • Ileostomy
    • Urostomy
    • Suggested Resources
  6. Respiratory System Structure and Function
    Lauren Perlman and Dennis Rosen
    • Disorders Affecting the Respiratory System
    • Supplemental Oxygen Use
    • Tracheostomy
    • Tracheal Suctioning
    • Tracheostomy Tube Changes
    • Manual Resuscitation Bag
    • Nose and Mouth Suctioning
    • Nebulizer Treatments
    • Mechanical Ventilators
    • Continuous Positive Airway Pressure and Bilevel Positive Airway Pressure
    • Mechanical Insufflation-Exsufflation
    • Pulse Oximetry
    • High Frequency Chest Wall Oscillation
    • Speaking Valve for Tracheostomy Tube
    • Suggested Resources
  7. Diabetes
    Sara Einis, Jenny Kinne, Michelle Raymond, Kathleen Reardon, Abhinash Srivatsa, and Karen Y. Warman
    • An Introduction to Diabetes Mellitus
    • Types of Diabetes
    • Insulin
    • Insulin Delivery Systems
    • Insulin via Vial and Syringe
    • Insulin Pens
    • Insulin Pumps
    • Carbohydrate Counting
    • Blood Glucose Testing
    • Ketone Testing
    • Glucagon Administration
    • Common Diabetes Problems
    • Diabetes Emergencies
    • Planning for Disasters and Emergencies
    • Tools for Effective Diabetes Management in School
    • Suggested Resources
    • Additional Resources for Diabetes Nutrition
    • Appendixes
      • Basal-Bolus Therapy Teaching Sheet
      • Healthy Snacking for Children with Diabetes
      • School and Camp Medication Order
  8. Neurological Issues
    Tish Reidy, ReRe Dawley, Tara Kelly, Kerry Matthews, Susan McNamara, Cheryl Cahill, and Carole Atkinson
    • Seizures
    • Vagus Nerve Stimulation
    • Ketogenic Diet
    • Hydrocephalus: Shunts and Endoscopic Third Ventriculostomy
    • Intrathecal Baclofen Pump
    • Suggested Resources

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